Monday, November 17, 2014

Random Monday - November 17, 2014

Star has never been jealous of Little Dude despite how much time I've spent holding him.  However, I picked Little Man up the other day and she went nuts.  She kept tugging on my leg and yelling "Out, out!" which is her word for "up."  When I finally put him down and picked her up, she snuggled in and looked up at me with a smile, "My spot." she said with satisfaction.

Little Man: "Mommy, can we glue this feather to the front door?"
Me: "Um, why do you want to do that?"
Little Man: "So everyone would know we have a feather!"
I'm not gluing a synthetic blue feather to my front door. So everyone....WE HAVE A FEATHER. Just so you know.

Little Man was digging through the diaper bag and happened to find a *ahem* feminine product that I'd stashed in the deepest pocket.  Holding it up, he yelled across the house, "Mommy, what do you use this for?!?"
I'm not going to have that discussion with my four old son.  Just...no.

It's officially winter here.  We had our first snow and bought our first snowblower.  Personally, I think a shovel works just as well and is a lot cheaper...says the spouse who doesn't do any snow removal around here.


Little Man loved shoveling even though he basically just moved it in front of the garage door.





I'd forgotten how two year olds throw marathon tantrums.  An hour of screaming over the fact that I gave you the blue cup instead of the red one is really pretty ridiculous and it earns you a timeout in your bed.  Not that I'm talking about any one of my children in particular, of course.  Especially, the two year old.

Princess: "Look at those huge ice cubes hanging outside!"

If you don't read the MommyShorts blog or follow her on Instagram, you're missing out on some hilarious stuff.  To up the ante on the hilarity, her two year old now is gramming as well.  

Thursday, November 13, 2014

The Best Time to Be a Kid

Disclaimer: This post contains affiliate links.  By purchasing items through those links, I will earn a commission. You will not pay more by buying a product through my link. When you buy through my affiliate link, it helps me be able to offer you free items and giveaways. 

Yesterday, it snowed for the first time this year.  Normally, I'm breaking out the Christmas music by this time in November, but I'm running a little late this year.  Something about having four kids and being insanely busy, I think.  But Christmas has definitely been on my mind more in the last week and I've started thinking about everything I have to do to get ready.  Christmas shopping, decorating, cookie baking, ordering Christmas cards, etc.  Last year, we didn't set up our Christmas tree since space was very limited in our apartment so I'm really looking forward to decorating our new house.  The kids keep sneaking downstairs to the basement to peek at the Christmas tree in the closet under the stairs and whisper to each other about how they can't wait for it to come upstairs. 

One of my favorite Christmas traditions from when I was a kid is our reading party.  Yup, you read that right!  A party where everyone picks a cozy spot to read a Christmas book or two and snack on treats while Christmas music plays.  Of course, it's a little harder to relax and read a book when you have young kids, but last year, I was able to have our first Christmas reading party with Princess and Little Man.  I put Star to bed, made hot chocolate, and broke out the Christmas cookies.  Then the three of us sat on the floor and I read Christmas books out loud.  They didn't last long before they started getting tired, but it was fun to see them enjoying a tradition I loved so much as a kid. 


What holiday traditions are you passing on to your children?  Share how you make the holidays the best time to be a kid on Instagram or Twitter and use the hashtags #BestTimetoBeaKid #Contest for a chance to be featured in Gymboree's end-of-year video and to be entered to win a $2,500 shopping spree at Gymboree.  To see official contest rules and checkout all the fun visit this link.  And seriously, a shopping spree for adorable clothes and accessories for your kids...that definitely would make it the #BestTimetoBeaKid!



Friday, November 7, 2014

The Only One?

I recently read this article about a 12 year old boy who is starving because he can't eat and it was upsetting to me.  First of all because this boy and his family have to go through something like this and secondly because of this statement in the article: "He lacks all impulse to eat or drink. And he might be the only person in the world burdened with this bizarre medical condition."  (Italics mine)

The only person in the world?  Really?  Apparently, the reporter didn't bother to do much research on the subject other than on the boy featured in the article himself.  I belong to a support group on Facebook called "Pediatric Feeding Disorders/FTT/GERD/Kiddos with Feeding Tubes" with over 6000 members.  Six thousand members.  That's six thousand parents and caregivers of children with feeding issues.  It's estimated that approximately half a million people worldwide have a feeding tube.  The lack of understanding for pediatric feeding disorders is astounding and quotes like the one in the article only perpetuate the lack of awareness.  

Eight month old Little Dude is one of the many children who have a feeding disorder.  He rarely shows hunger cues and, if it were not for his strict feeding schedule, would go all day without eating.  Every three hours, I make a bottle and work with him to get him to drink it.  Sometimes he drinks the whole thing, but more often then not, he drinks very little or none so I have to feed the rest of his formula through his feeding tube.  Despite my constant efforts to feed him orally, he gets about 50% of his food via his G Tube.  After running dozens of tests, his doctors still have no idea why he doesn't eat.  The lack of diagnosis means that it can be hard to get people to take his feeding disorder seriously.  I've been accused of overreacting or just not trying hard enough to feed him.  Some people see the feeding tube as the easy way out (Sorry, but having a hole in your child's stomach and dealing with tubes, syringes, infections, etc, is actually NOT easy).  Let me tell you, until you have watched your child waste away and starve in front of you, you cannot understand how absolutely heart wrenching that is.    

Little Dude at 2 1/2 months old, shortly after having his G Tube placed

Little Dude at 7 months old, 5 months after getting his G Tube

The article concludes with a plea from the parents.  They're desperate to find others going through the same thing as them both for the support and to help them find answers.  It's heartbreaking that they think they're alone in this struggle.

So why aren't they aware that so many others are dealing with similar issues?  Probably because pediatric feeding disorders are not usually talked about.  The general consensus is that children who won't eat are spoiled and manipulating their parents.  Telling someone that your child has a feeding disorder opens you up to a lot of criticism and critiquing of your parenting skills.  Not being able to feed your child, the most basic of parental care, makes you feel like a complete failure as a mother or father.  Parents of children like my Little Dude often hear statements such as "He'll eat when he gets hungry enough.  Babies won't starve themselves!" or "Let me take her home for a while.  I'll get her to eat!"  Both of these comments are untrue and hurtful because they only make a parent who is struggling to feed their child feel even worse than they already do.

If you have a child with feeding problems, know that you are not alone.  There are many groups and pages on Facebook for support and information, internet forums and websites (www.feedingtubeawareness.com is a good place to start and has many resources), and some areas even have local groups where you can meet other parents with similar issues.

If you are blessed to have children who eat normally, don't take them for granted and please don't jump to conclusions or judgement when you see another parents struggling to feed their child.  You can find tips on how to support a parent with a child or children with feeding disorders here.       



Thank you for stopping by my blog! I appreciate each of my readers and would love to connect with you on Facebook and Instagram!


Thursday, November 6, 2014

Little Dude - 8 Months

Yes, I know I skipped Little Dude's 7 month update. Oh well, I wasn't aiming for mother-of-the-year so I'm fine with it!   


Age: 8 months


Weight and height: 16 pounds, 4 ounces.  I'll find out his height at his 9 month checkup next month. 

Wearing size: Size 3 diapers and 6-9 month clothes.  He must have had a growth spurt because all of a sudden, his 3-6 month clothes were too short for him. 

Likes: He's very sociable and LOVES attention.  He loves blankets and snuggling.  His favorite toys are ones that play music.  He LOVES rolling over and has figured out that he can get places by doing so

Dislikes: Being where he can't see me.  He also really hates it when I do his G Tube care every morning-not because it hurts, but because he can't roll over and play when I'm doing it.  To get him to lay still and stop fighting me, I play a Youtube video on my tablet for him to watch while I'm taking care of his tube.  He's a big fan of Baby Einstein, Peter Hollens (his favorite is Ashland's Song-he smiles whenever I turn it on), and Lindsey Stirling

Eating habits:  He gets five 5.5 ounce bottles a day which means that I don't have to stay up late to do the last feeding of the day while he's asleep anymore.  He takes about 50% of his formula by mouth and the rest is tube fed.  He usually gets baby food three times a day-2 tablespoons of rice cereal in the morning and 2 tablespoons of baby food each for lunch and supper.  His excema flared up when I gave him applesauce so after trialing it again with the same results, apples are on his do-not-eat list.  He does seem to have some issues with staying full longer than he should.  He was able to eat a 4 ounce jar of baby food in a sitting and so we tried cutting back on his formula since he was eating so much food, but he ended up losing 11 ounces in 6 days when we did that so for now we're focusing on formula.  He also stays full a lot longer when he eats baby food and isn't able to handle taking formula for long periods of time after eating (longer than normal) so the most baby food I give him at a time is 2 ounces which is still pushing it a little.  He is developing the same eating habits for baby food as he has for formula-sometimes he eats it well and sometimes he doesn't.
     
Sleeping habits: His sleeping habits have seriously improved.  It kind of happened overnight (pun intended) when I moved Star out of the crib and moved him in about a month ago.  That night, I laid him down awake and he fell asleep.  ON HIS OWN!!!!  Ever since then, I've been able to lay him down awake in the crib (he won't do it anywhere else) most of the time for naps and bedtime and he will fall asleep, usually without crying too much.  Every once in a while, I still have to rock him to sleep, but I find that I can appreciate that a lot more now that I'm not spending literally half my day rocking him.

That smile kills me with cuteness

Milestones: He has SIX teeth already!  They didn't seem to bother him much when they came in so I didn't really notice until they had already popped through.  He has two on the bottom and four on the top.  He's also rolling over like crazy in both directions (right and left although he still prefers rolling to the left), and I saw him push himself up on his arms the other day.  We've been practicing sitting unassisted a LOT (I sit behind him with my hands close enough to catch him without touching him).  He's not ready to sit on his own, but at he's getting better at keeping his balance for short periods of time.    
    
Miscellaneous: He's gotten sick twice in the last month and a half which, obviously, is bad, but, he managed to stay out of the hospital both times so that's awesome!  His G Tube site looks great right now, thanks to the Granulotion and thankfully his Strep has not come back again so no infections lately.  We're watching it closely though and if there's any change in his stoma, we'll be taking action immediately because it worsens so quickly. 



Thank you for stopping by my blog! I appreciate each of my readers and would love to connect with you on Facebook and Instagram!

Tuesday, November 4, 2014

11 Tips for Supporting Parents of Children With Feeding Issues

It's unknown how many children have pediatric feeding disorders and issues, but there are more than most people realize.  Just a few of the many reasons for a child's inability to eat are GERD,  aspiration, allergies, motility issues, etc.  The list is extensive (you can see a partial list here) and sometimes a child never actually gets a diagnosis.

Parents of little ones with feeding issues face a lot of challenges and often feel misunderstood and like they don't have support.  I've put together a list of ways you can support a parent of a child with feeding issues.       



1. Reach out to me.  Just having someone listen and not give advice or second-guess my decisions is huge.

2. Help me out with my other kids.  Taking care of a child with a feeding issue is very time-consuming, and I often worry that my other children aren't getting enough attention.

3. Be sensitive when complaining or bragging about your child's eating habits.

4. Don't compare my child to a child who's a picky eater.  A picky eater is NOT the same as a child with a feeding disorder.  

5. Don't leave my child out of activities or parties.  Just because a child is not able to eat like everyone else doesn't mean that he or she doesn't want to have fun like everyone else.

6. Don't suggest different diets, treatments, etc.  I work very closely with my child's doctor to come up with the best plan for his or her diet and feeding methods, and chances are that the trick you read about in a parenting magazine to get kids to eat isn't going to work.  On that same note, don't ask if I've tried this, that, or the other thing.  Believe me, I've tried EVERYTHING.

7. Don't tell me I'm over-reacting.  I'm not.  Children with feeding issues can literally starve to death without proper treatment.  On that same note, "I know he'll be just fine" is not actually helpful to hear when I don't know exactly what the future holds for my child.  I'm being realistic, not pessimistic.  

8. Don't be nervous or avoid me when I'm tube feeding my child.  Ask questions, but DON'T say things like, "Oh, that's gross." 

9. Don't assume I'm a lazy parents because I'm tube feeding my child or giving him or her special high-calorie food or drinks.  This does NOT mean that I've given up, it means that I'm okay with my child getting help to get the nutrition he or she needs to survive.  And believe me, I've second-guessed myself about this enough and don't need anyone else doing the same.

10. Don't judge me when you see me giving my kid junk food and high calorie/high fat foods to eat and cheering him or her on when they actually eat it.  My kiddo struggles to gain weight and is under doctor's orders to eat things like that.  Do NOT lecture me on the benefits of eating healthy.

11. Don't tell me that you could never do what I do.  I didn't think I could do it either until I had to.  As a parent, you do whatever it takes to care for your child.  A lot of times, I'm falling apart on the inside and hearing how strong I am over and over again makes me feel like I'm failing because I'm not that strong.  I'm just taking care of my kids like any parent would do.





Thank you for stopping by my blog! I appreciate each of my readers and would love to connect with you on Facebook and Instagram!


Monday, November 3, 2014

Random Monday - November 3, 2014

If you haven't seen it yet, go read my review on "Their Name is Today" by Johann Christoph Arnold and enter to win a copy of the book for yourself.  But only if you have children.  Or grandchildren.  Or students.  Or nieces or nephews.  Or come in contact with children at all.

I have three of the four kids' winter clothes unpacked.  Little Man will just have to freeze in his short sleeved shirts until I get around to re-working his closet too.  Or he could just listen to his ever-so-smart Mommy and wear a sweatshirt instead of whining about how cold he is.

Speaking of switching out the kids' clothes, Little Dude outgrew his 3-6 month clothes and I had to get the 6-9 month clothes out for him.  I may or may not have cried a little while I was packing away his 3-6 month clothes because first of all, there's this and also because he didn't get to wear a lot of his clothes because they weren't G Tube friendly.  I know it's a small thing, but it still bothered me that he missed out on getting to wear some of the clothes passed down from his big brother because of his G Tube.

If you follow me on Instagram, I apologize for the repeat pictures.  But seriously, these kids are so cute, I don't think it'll kill you to look at them again :)

We don't celebrate Halloween for religious reasons, but we still let the kids dress up for school.  I saw a pizza costume at Target and knew that Little Man had to have it as he's insanely obsessed with pizza (he'd be thrilled if he could have it for all three meals and a snack everyday).  But the price tag made me back away shaking my head.  So instead, I headed over to Hobby Lobby and picked up some felt and made one for him.  It was super fast to sew up and turned out really cute.  He absolutely loves it and begs to wear it everywhere we go.
 

I have a weird sense of humor.  It's genetic.  My whole family is weird.  But even I know it was a little pathetic that I spent several days looking for Little Man's dress-up cowboy hat just so I could get this picture of Little Dude...


Folks, meet Walker Texas Ranger.  Hahahahahahaha!!!!  I slay myself...  *crickets chirping*  Okay, fine.  At least I thought it was funny.


Sunday, November 2, 2014

"Their Name is Today" Book Review and Giveaway

Disclosure (in accordance with the FTC's 16 CFR, Part 255: "Guides Concerning the Use of Endorsements and Testimonials in Advertising"): Many thanks to the Propeller Consulting, LLC for providing this prize for the giveaway.  Choice of winners and opinions are 100% my own and NOT influenced by monetary compensation.  I did receive a sample of the product in exchange for this review and post.  Only one entrant per mailing address, per giveaway.  If you have won the same prize on another blog, you are not eligible to win it again.  Winner is subject to eligibility verification.



About the book:
Despite a perfect storm of hostile forces that threaten to deny children a happy, healthy childhood, courageous parents and teachers can turn the tide.  Yes, we can reclaim childhood, says Johann Christoph Arnold, whose books have helped more than a million readers throughout the challenges of education and family life.  In Their Name is Today, he highlights drastic changes in the way our society treats children.  But he also brings together the voices of dedicated parents and educators who are finding creative ways to give children the time and space they need to grow.  Cutting through the noise of conflicting opinions, Arnold takes us to the heart of education and parenting by defending every child's right to the joy and wonder of childhood.

When I started reading Their Name is Today, I sat down with a highlighter so I could highlight the points I liked or wanted to remember.  Before I was halfway done with the first chapter, I'd abandoned the highlighter in lieu of turning down the top corner of the pages I thought contained valuable information because I was highlighting so much.  By the beginning of the second chapter, I'd given that up as well because just about every page had a corner folded down.

The thought that kept going through my head was, "Every person who comes in contact with children NEEDS to read this book."  That includes parents, grandparents, teachers, daycare providers, Sunday School teachers, etc.  The US Department of Education especially needs to read this because the public school system could use a pretty big overhaul as the current system is damaging to so many children.  Believe me when I say that I will definitely be passing this book around to my friends and family and encouraging them to buy their own copies to keep.     

Arnold emphasizes the blessings that children are and how much responsibility we, as adults, have towards them.  Our society sees children as a burden that is to be pushed off on someone else to deal with.  We've forgotten that children are actually adults-in-training and without the care and love they desperately need, they will not grow up to be the kind of adults this world needs to keep going.  Their Name is Today reminds the reader of the importance of children and pinpoints many of the issues facing children and the adults raising them today.  But it doesn't stop there like so many articles I've read.  It continues with solutions and ideas that each parent, each teacher, each caregiver can utilize to help one more child have the childhood they deserve.   

Do you have children?  Babysit?  Teach?  Come in contact with children at all?  Then you are going to want to read this book!  Win your own copy by entering on the Rafflecopter widget below.

a Rafflecopter giveaway







Thursday, October 23, 2014

Getting Our Flu Shots

Being the adventurous, fun-loving person that I am, I took all four of the kids to get flu shots today.  I even set a good example by signing up to get the shot for myself too.

What did you say we're doing today?
 
I didn't tell the kids where we were going because I knew mass panic and hysteria would set in.  The kids were generally happy and talkative when we got there, introducing themselves as Elsa, Olaf, Anna, and Sven which the nurses thought was funny.

Then we went back to the room for the shots.  By this time, they knew what was coming and were getting apprehensive, but no screaming or fighting had commenced so I was feeling pretty good about the whole thing.  Little Man was first up.  He got the flu mist and sat perfectly still with a smile on his face while getting it.  Star was going to be next, but they checked her vaccination records right before giving her the shot and saw that she'd received the flu shot at her two year checkup a few weeks ago.  I counted that one as a Mommy Fail, but I was happy that she didn't have to get a shot.  Next was Princess.  Unfortunately, due to her asthma, she couldn't get the flu mist.  She was fine until she heard her name and then she. flipped. out.  She screamed, cried, refused to take her sweatshirt off (I practically had to break her arm to get it out of the sleeve), and fought me like a cat getting a bath.  I held her on my lap and gave her a "bear hug" and one nurse held her legs still while another gave the shot.  I have a tendency to laugh in tense situations so the nurses probably thought I was the meanest mom ever, but oh well.  Thanks to her super tense muscles, Princess bled all over herself and me.  After it was over, she was perfectly fine and even admitted that it barely hurt and wasn't nearly as bad as she thought it was going to be.  Oh look, Mommy was right again... 

I got the shot next.  The kids watched me closely and were very proud of me for not crying, haha.

Last was Little Dude.  He shocked us all by not crying at all when he got the shot.  He was just so thrilled to finally be the center of attention again that he kept smiling at me and the nurses.   

During this whole thing, Star entertained herself by stealing stickers off the desk, sticking them on the linoleum floor, and then stomping on them.  I scraped until my fingernails were toast, but couldn't get them all up.  I apologized several times, but short of sticking around for an hour with a bucket of water, I wasn't going to get them cleaned up off the floor.  I think they were just happy to see us leave at that point so the stickers were small potatoes.  

When we got home, Hubby was there.  The kids were very eager to tell him about our afternoon, and Little Man couldn't stop bragging about how brave he was for not crying when he got his shot (reminder: he got the flu mist).  Princess wanted to know if he could hear her screaming all the way from the doctor's office.

So, really it wasn't as bad as I thought it was going to be.  I've had worse trips to the store.  All done until next year!  



Monday, October 20, 2014

Random Monday - Oct 20, 2014

I just love watching toddlers learn new things everyday.  It's seriously the cutest thing ever.  Well, most of the time anyway.  In the past week, Star has learned several new things...
  • She learned how to climb out of her bed at night.  She comes out in the living room with a big grin on her face and announces, "No, nigh-nigh!"
  • She learned how to open the storm door.  When the weather's nice, I leave the front door open and pull the storm door shut to let some fresh air in.  The storm door is incredibly hard to open, even for an adult.  But my 2 year old figured it out!
  • She learned how to buckle the chest clip on her carseat and Little Dude's carseat.  So annoying when we're in a hurry to go somewhere, and I have to take a child back out of their carseat to unbuckle the chest clip before I can buckle them in properly. 
This morning I told Star that she's cute.  She looked at me with a frown on her face and said, "No no no no.  (Insert Little Dude's name here) doot."  So I guess he's cute and she's not.  Which, by the way, makes her even cuter.

Little Man told me this morning that he's never going to throw a fit or tantrum again.  He lied.

By some miracle, my two sisters and I were able to visit a coffee shop on Saturday sans kids.  That's right...NO KIDS.  My younger sister isn't married yet, but between the two of us older ones, we have eight kids, ages six and younger.  It was a heavenly few hours.  And then we had to go home.  But at least we got a little break! 

My younger sister is a bit of a coffeeholic. 
 


Friday, October 17, 2014

A Day in My Life

I've had several requests for a "day in the life" post.  Never one to disappoint my many fans (you know, all two of them), I finally buckled down to doing one.  I decided to do it this past Monday which meant writing down what I was doing so I could then type it up in blog form.  Monday started off as a good day and then by mid-morning, it went haywire.  I thought about scratching it and trying again on a more "typical" day, but realized that Monday was a typical day for me.  At least several times a week, my day is thrown out of whack because of doctors' appointments, last minute or scheduled, or other medically related issues.

6:45 am - My alarm goes off.  I think about throwing my phone out of the window, but decide against it.  I hit the dismiss button and drag myself out of bed to wake the two oldest kiddos up for school.  As usual, neither is happy with this.  Princess refuses to pick out her own clothes, but complains about what I pick out for her, Little Man throws several tantrums in the first 10 minutes of waking up because he wants to go back to bed.  He asks if he can pretty please take a nap when he gets home from school because he is sooooooo tired.  I oblige, but know that he'll have changed his mind by then.  Neither one want to eat anything we have in the house for breakfast.  Star wakes up and can't seem to understand why everyone in the house isn't catering to her every whim.  Little Dude also wakes up and is ready for his first feeding.  Hubby and I tag team this whole production.

7:30 am - I prep Little Dude's feeding and meds and make myself a chai latte.

7:40 am - Princess gets on the bus.  I am working with Little Dude to drink his bottle.

8:00 am - Hubby takes Little Man to preschool and then leaves for the farm.

8:30 am - Little Dude is finally done with his feeding.  He ate 4 ounces so I tube fed him the remaining 1.5 ounces along with his meds.  I get some warm soapy water ready for his tube care.  He got another infection around his G Tube on Friday so it's a little more time consuming than usual.  I also change his diaper, do his skin care routine for his eczema, and get him dressed for the day.  Star gets into about a million things while I do all this.


9:00 am - Little Dude eats 2 tablespoons of rice cereal.

9:30 am - I have just laid Little Dude down for a nap when the doorbell rings.  I forgot about the public health nurse coming for his weekly weight check.  Naturally, the house is a disaster, but she is pretty used to the craziness at my house by now and understands.  :)  Little Dude is up to 15 pounds, 13 ounces which is a weight gain we're both happy with.  I discuss his current feeding regimen with her and we agree to continue with it.  Just for fun, Star climbs on the scale too.  She weighs 21 pounds, 10 ounces, less than 6 pounds more than her baby brother.

9:45 am - After the public health nurse leaves, I lay Little Dude back down for a nap.  I have to go in and give him his pacifier several times and he refluxed and choked once, but he eventually falls asleep with a minimum of crying.  I check Facebook and happen to see that the wipes we bought from Sam's Club in July have been recalled for a bacterial contamination.  Immediately, my mind goes to the recurring G Tube infections Little Dude has had since we started using the wipes.  I make a phone call to the doctor to see if they think there might be a connection.  She says she will call back after doing some research.

10:00 am - I change Star's diaper and go in her room to pick out her outfit for the day, but lo and behold, all of her clothes are in the dirty laundry.  I pull out the box of 2T clothes and pick something out for her to wear.  It's way too big.  Oh well.

10:20 am - I log onto Little Dude's online medical portal and check dates on his G Tube infections and then call Sam's Club to determine when exactly I bought the box of wipes.  The dates line up.  Then the doctor calls back and informs me that Little Dude has Strep.  On his G Tube.  Great.  We talk about how I need to disinfect ALL THE THINGS and keep the kids from sharing germs.  I have a mild panic attack just thinking about it.  I call Star's doctor to make an appointment for her because I suspect she has Strep too.  While I am on the phone, Star has dumped out and eaten half a bag of chocolate chips.   

11:00 am - Time to pick Little Man up from preschool so I wake Little Dude up and am putting him in his carseat when I realize that he has soaked through his diaper and all over his outfit.  I change his whole outfit quickly and rush the kids up to the school so we're not late for pickup.  Little Dude is already 30 minutes late for his feeding.

11:20 am - Home with a very talkative Little Man.  I try bottle feeding Little Dude, but he will have nothing to do with it so after working with him for a while, I tube feed him while he cries nonstop.  Little Man and Star are making up for lost time by getting into EVERYTHING together.  I set the alarms on my phone for the rest of the day's feedings so I don't run late on another feeding.  Little Dude is getting very worked up and I'm feeling just slightly extremely overwhelmed.  I vent him through the G Tube mid way through the feeding because his stomach is hard and distended.  I get a lot of air out, but his mood does not improve.  Mine doesn't either.


12:30 pm - Finally done feeding Little Dude so I throw a frozen pizza in the oven for the kids and Hubby.  I call my sister-in-law (kinda handy to have a doctor in the family) to talk about the Strep and wipes fiasco.  I end up venting my frustrations over Little Dude's health to her.  I give her extra points for not hanging up on me.  After I hang up, Hubby comes home for lunch.  I dish food out for everyone (except me) and sit down to feed Little Dude some pureed pears.  I finish my now-cold chai latte.

1:00 pm - Little Dude is in his crib napping and the big kids are eating goofing off at the table.  I clean the kitchen which hasn't been touched since yesterday afternoon.  So. Many. Dirty. Dishes.  I also wash Little Dude's bottles, med syringes, and tube feeding supplies.   When the kitchen is cleaned up, I lay Star down for a nap and do some laundry.  I call the school to arrange for Princess to go home on her cousin's bus today since we probably won't be home when school gets out.  Then I call my sister to let her know that there will be an extra kid at her house today.  Hubby leaves to go back to the farm and I feel a sense of despair as I watch him leave.

1:45 pm - Little Dude is still sleeping so I tube feed him his entire bottle.

2:30 pm - I get Little Dude and Star up from their naps so Star can go to the doctor.  Neither is happy with me.  We make it to the doctor's office in time.

3:40 pm - Finally done at the doctor.  Star does indeed have Strep.  Oh joy.  Like the idiot I am, I decide to run errands with the three younger kids before picking Princess up from my sister's house.  We start at the grocery store where I have exactly three things on my shopping list.


4:25 pm - We leave the grocery store with two things.  I fondly nickname our grocery store visit "The Worst Shopping Trip Ever" and head over to my sister's to drop Star and Little Man off so I can finish running errands with Little Dude (you know, the kid who doesn't whine, argue, throw screaming tantrums in the middle of the aisle, or run away from me).  I stop at the pharmacy which is practically our second home at this point and the library.  I don't need anything at the library, but I'm stalling picking the kids up.

4:45 pm - I pick the kids up from my sister's and we head home.  I get another feeding ready for Little Dude.

5:30 pm - Little Dude happily drank the whole bottle so the feeding went faster than usual.  When he's done, I lay him down for a nap.  I start supper for the kids while they jump off the couch onto the coffee table despite my warning to stop.  A few minutes later, two of them are crying because they got hurt (told you so!)  I pack Hubby's lunchpail for work and fold a load of towels.

7:00 pm - The kids are done eating supper and Hubby is off at work.  Little Dude wakes up fussy and crying just as I start getting the other kids ready for bed.  I rush to put the kids to bed so I can calm Little Dude down before he throws up or chokes.  The kids fight the bedtime routine and naturally, Little Dude starts choking and turning blue midway through Little Man's second tantrum.

7:45 pm - The big kids are in bed, but not sleeping.  I feed Little Dude half a jar of pureed pears and play with him for a while, incorporating some of his physical therapy into the playtime.

8:15 pm - I get Little Dude's bottle and meds ready for his last feeding of the day.  He refuses to drink most of it so I end up tubing it.  I change him into an overnight diaper and his pjs and change the gauze around his G Tube.


9:15 pm - Little Dude is done eating and ready for bed.  I lay him down and check on the other kiddos who are (finally!) all sleeping.  Woohoo!  Freedom at last!  I turn on Netflix and catch up on emails, texts, and Facebook for an hour and half before I go to bed.


Do you have a "day in the life" blog post you've written?  Leave a link in the comments so I can check it out!